As the number spiked this week at 1700 U/L, I ran out of excuses, and my PET scan on Wednesday showed a return of the cancer to my liver. She lit up with all that breath. Later, she asked him if hed be willing to record the audiobook of her latest novel, The Dutch House. When he agreed, she began a protracted email exchange with Raphael to work out the details. She repeated her gratitude and I waved it away. I didnt see how it could hurt to ask. She was a zombie in the original Dawn of the Dead. Information; Artists; Auctions; Exhibitions; Magazine; Services; Market Analysis . Other doctors are quick to do him favors because hes done so many for them. But she rarely stayed upstairs. I told him about Sooki that night, but it was equally possible that I wouldnt have. There were pictures of her at twenty-two, beautiful and dark-eyed, standing on somebodys desk in little canvas tennis shoes, her gloved hands holding a bat and a net. I cant tell you how grateful I am. It was such a short trip it hardly counted as being gone. This wasnt out of the ordinary for me, as Im sure it wasnt for her. Im just wondering if you got in the habit of not talking about yourself because of the work you do. I told her about a friend of mine who worked as an assistant for a hedge-fund manager in New York, and how she parked every piece of herself at the door when she went to work in the morning. Tom and Rita were in Australia, where he was about to start shooting a movie about Elvis Presley. It would take nothing for her to blow away. There was my grandmother, my father. Im still hereat Playtone and in general. She shouldnt stay for us or leave for us. You might not see how everything threads together as you read along, but when you look back from the end of the story, the map becomes clear. Was it like they said it would be, life-changing? He has me repeat my name, birth date and area of radiation each time before I enter the room. But I think Ann is the saint in the story. Raphael is Tom Hank's assistant and friend. She owned beauty because she was beauty, and so she could express it on canvass, or in an email to a friend, or in a prayer to the sun.. This was what I knew about Sooki: She lived in Los Angeles. Two words I kept trying to bring up as I convulsed on the bathroom floor. You dont think this is crazy?, I didnt say that, but I know youre trying to help Sooki.. For them the mystery is solved by the act, and I understand that; its just not the way I work. I emailed him at work. Save me. PATCHETT: Right. I asked him how he would feel about my extending an invitation to stay. We were in this together. She had wanted to study painting in college but it all came too easilythe color, the form, the techniqueshe didnt have to work for any of it. 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The grass was still brown and only a handful of the thousands of bulbs had opened. Everyone was wide awake, waiting up to see if the world was going to end. One morning Sooki had coffee with Sister Nena and me before she went to a yoga class across the street from the restaurant we went to for breakfast. Ken would come later. Hanks, by way of reciprocation, agrees to do the audio recording of Patchetts eighth novel, The Dutch House, and a sporadic email exchange between Patchett and Sooki develops into a friendship. Sadly, Raphael passed peacefully on April 25. No one had ever been so welcome. Walking backward is an excellent means of remembering how little you know. Would you feel better about it if I did it with you?, She looked at me. She needed me to take her to the hospital for an X-ray. Twenty-five people had been killed in the last round of tornadoes in Nashville, two months before. My artwork is very reflective of my cancer journey, Cuozzo says. We didnt know each other, and for the most part our correspondence had come after this defining fact. We hadnt paid the check. I went upstairs to get the scissors out of my sewing basket. Are you okay? I asked. The paintings were bold, confident, at ease. I didnt say, This thing you live with every minute, this heaving horses skull, I held it for you today so that you could talk it out with the people who love you. We said our goodbyes and Adrian and I walked downtown to see what had happened. We can go up and back the same day.. We at Harper's Magazine are deeply saddened by the loss of our former contributing editor Barry Lopez (1945-2020), who died on Christmas Day.Over the course of four decades, Barry wrote more than a dozen works of criticism, reportage, and memoir for the magazine, all of them informed by the combination of wonder and moral urgency that made him one of America's most beloved . She had moved in before the pandemic. Things can get very confused. Im afraid if I leave Ill never see you again, she said in a voice I could barely hear. But the clinical trial she needed was here in Nashville at the hospital where my husband worked. She was disappointed. He holds a kind of medical currency, saved then spent, and when needed, he can marshal all necessary parties into immediate action, bringing them together so fast that whatever needs to happen can happen yesterday. We did this to ourselves, I said, or maybe I didnt say it. Look at this.. There she was in the doorway, outlined in neon tubing. We would all proceed with our lives except that now we would be together. PATCHETT: Every single thing was from scratch. I keep throwing things out. She had brought a squeaky toy for Sparky. I was already years ahead of myself, thinking of all the good Tom Hanks could do for independent bookstores. The months shed lost not being in chemo while they struggled to locate the new tumor had put her perilously behind. The chemo, the clinical trial, the yoga and the vegetables, the prayers of nuns and all the time to paintwhat if it added up to something? This wasnt the first time Id invited someone we didnt know to live with us. FOLFIRINOX had also given her a profound aversion to cold. Dont worry about it, Tavia said. How it happened is told in the title story of These Precious Days, Patchett's second collection of essays. And also, she was very low on white blood cells. Their close friendship began through email, and would eventually lead to Patchett offering her home to Raphael in early 2020 so she could receive cancer treatment in Nashville. Her CA 19-9 was 170, down from 2,100 when she arrived in February. What Sooki is, Tom wrote to me in an email later, is all that is good in the world.. I tugged at Karl and the three of us went downstairs with the dog. So what are the deadlines, days needed, etc? KELLY: (Laughter). Save my name, email, and website in this browser for the next time I comment. I find these things go better if you just wing it. Then the two of us stepped out into the blinding light. Karl had started flying in Mississippi when he was ten. That led to Patchett's friendship with Sooki Raphael, Hanks' assistant, and Patchett inviting Raphael to live in her home in Nashville while undergoing cancer treatment. He watched classes on his computer and worked through calculus problems at the dining-room table. At any point in life. My childhood best friend was staying with us while this discussion was going on. KELLY: Speaking of friendships that we make in college, early in life when we - it feels like we have all this time to just live in the present, tell me about another essay - "The First Thanksgiving." Sooki Raphael: These Precious Days RoseGallery Santa Monica | California | USA Apr 10,2021 - May 10,2021. In making the journey to Oz, she had found the strength and clarity she needed to go home again. He responded: mar. How do you fly from Nashville to New York in a single-engine plane for a two-hour visit? Facedown on a bath mat, I forced myself to take a breath. Germline mutations in ATM, BRCA1, BRCA2, CKDN2A, PALB2, PRSS1, STK11 and TP53 are associated with increased risk of pancreatic cancer. It occurs to me that I should put that playlist on again and listen as Im writing this, but I will not. I could see what the cancers given me. Then this: june 21, 2019: As of last week, my six-month chemo run is done, and I had a follow up CT scan. We wrote about painting because she painted. She agreed to stay for a few nights, but after that she said she would rent a car and find a hotel. But she could. She certainly isnt short of abundant care for others, and by the time you get to the end of this collection its hard not to feel glad she saved her energy for writing. But this was right, and we would all be fine. Karl found a giant bright-blue tarp in the garage and Sooki spread it over the floor and table downstairs, setting herself up to paint. Ann. I asked her about her trip to Stanford for the biopsy, her flight to Nashville. How could anything have been saved? There are people here all the time. Sooki was coming as a patient, and more than a little of the work was going to fall to him. Susan Joan Sooki Raphael of Topanga, CA passed peacefully on April 25th surrounded by friends, family, color, light, joy, and love. I hadnt meant this to be my career. Afterward we sat up at the hotel and talked about this new coronavirus and whether the rest of her tour would be canceled. Arent we talking about doing this together?, Oh, I said. Maybe I would find the fight in me, but I was never much of a fighter. They were flying out at the end of May. Tom and Rita were back from Australia. No, its wonderful having her here.. I sat at my desk for a long time, trying to make sense of this: time when there was no time, and talent all out of proportion to the task. I shook my head. Hanks and his wife, Rita Wilson, also recognized the rare talent that was Raphael. A month later, I still hadnt seen all the clothes she had brought with her, and I never saw the cold caps. I wrote again. Three time cancer survivor, MariannaCuozzo, talks to SurvivorNet about how art helps her express herself. My death. 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They told me the story later: How after they landed, when they were all standing together on the lawn outside the small airport, a police officer came and told them they had to disperse. Forget that. We went to the bakery across from the bookstore and bought spinach-feta bread and cinnamon-raisin bread. I thought I was helping and now I wonder if Ive made it worse.. She was the magnet in the compass. Don't have an account? I wanted to know what her worst fear about staying here was, and after a pause she told me she was a vegetarian. I wonder, I said to her one night while we walked Sparky around the block, do you think youre a good assistant because youre a private person, or did you become a private person because youve been an assistant for a long time?. I hoped he would ask me to join them. He's really interesting. But when? Or I should say the boundaries you think are there tend to fall away. Ive written plenty of jacket quotes in my day, mostly for first-time writers of fiction whom I believed could benefit from the assistance. She learned to solo an airplane before she learned to drive. Off we went to bed, the book and I, and in doing so put the chain of events into motion. There was no other reason for me to be going on the cancer patients journey. I couldnt muster whatever it would have taken to follow her, but I could hear the music fine from where I was, Greckis Symphony No.3, Arvo Prt, pieces I had loved and would love no more. The tumor in her liver was shrinking. It was late and Id just finished the novel Id been reading. Enter your new information and click on Save My Changes. She and Ken put what mattered most in the car and started driving, waiting to see which way the wind would shift the wall of flame. There is a possibility that a $25 painting acquired in 1899 was an original Raphael worth $26 million. Then Sooki and I went to the kitchen, mixed our pre-measured packets of mushroom powder in with yogurt, and poisoned ourselves. We could all be boring together.. In return, she sent me pictures shed taken of Los Angeles, a woman in an orange sari sailing past a city bus on a bicycle. With many creative endeavors - from clothing to ceramics to a long career in the film industry Raphael has contributed to numerous projects, busily attending to the arts through a multiplicity of avenues. You can be certain that she loves the job. Tom and I are waiting to go on. Asked to endorse Hankss short story collection,Uncommon Type, and then to interview him on stage during his tour, Patchett first meets Sooki in the wings of a Washington theater. In a recent post made to her official Instagram, the caption echoed this sentiment of Raphael sharing her unique perspective of the world through her art. And this is how Sooki became part of something bigger than herself, pure art destined to express the beauty and mystery of the world that she could see more than most of us can. ), she developed a deep and lasting friendship with his assistant, Sooki. But our truest means of communication arrived in the form of old yoga DVDs. I never cry, and yet I had plans to do nothing else for the rest of the day and maybe the rest of the week. They both had the coronavirus. I thought he should be angry at me. What with all the news of this new virus they thought there was a good chance people werent going to show up. I told her I would pick her up at the airport. Then as the world was ensnared by a global pandemic, the two friends formed a pandemic pod. In a piece for Harpers Magazine called These Precious Days, Patchett told the story of their friendship and spoke of her admiration for the paintings Raphael created at her home. I floated upstairs in a world that would not stop changing. Sitting there in her shaggy pink rock-star coat, Sooki told me how much shed come to hate the cold. But my sixty-four-year-old houseguest with recurrent pancreatic cancer asked for absolutely nothing but this. So the trial was supposed to start at UCLA a couple of weeks later. My cancer markerCA 19-9is nonspecific to pancreatic cancer (it can indicate other inflammation in the body), but its an indicator and is supposed to be at 35 U/L or less. Sooki, in her eye mask, was lying so serenely beneath the furry blanket she had brought us from California that I wondered if she was dead. Theres usually a guy working the light board and the mics who talks to me for a minute, though tonight the guy talking was Tom Hanks. I can fly you up, Karl offered, once her mother was safely home. One more reason to like Tom Hanks: hes a reader. I have to know where Im going, otherwise I spend my days walking in circles. I was grateful for both of those things. This is how we arrive at the next chapter of the story. The paintings came from a landscape of dreams, pattern on pattern, impossible colors leaning into one another. It had been more than two years since I met Sooki in a theater in Washington. It was possible, and I had no intention of thinking about it. Sooki went with him every day. Im going to have to have my hair cut, she said. feb. 8, 2020: I have wanted to writeevery dayfor forever. My continuous and varied relationship with exercise was an inheritance from my father. Hanks, by way of reciprocation, agrees to How it happened is told in the title story ofThese Precious Days, Patchetts second collection of essays. The ones Tom Hanks approved of were handed to me. She was to stay in the trial, three Wednesdays on, one Wednesday off, until the regime was no longer effective or, to put it another way, until she died. Coping with the loss of a loved one to cancer is incredibly challenging, but moving forward with the lessons your loved one shared and remembering you dont have to forget them to move forward can be a great place to start. It can be a character, a place, a moral quandary. The truth was that we had no idea how long we were going to be together. I wasnt suffering the crashing waves of anxiety that battered down so many people I knewthough two hours of daily yoga and meditation also contributed to keeping panic at bay. They clearly didnt understand she intended to walk, though knowing Sooki, she probably could have carried it. I looked up every anomaly online, settling on too much black tea, or maybe the wrong color shoes. Should I have woken them up and made them come down to the basement? When I was very nearly at the end, I came to a beautiful lake, the kind youd see on a Japanese postcard, or my imagined picture of a Japanese postcard. I will pick you up very late on Tuesday and take you to see Johanna on Wednesday. When Im putting together a novel, I leave all the doors and windows open so the characters can come in and just as easily leave. In life, time runs together in its sameness, but in fiction time is condensedone action springboards into another, greater action. I thought he was angry and at the same time I knew my judgment to be flawed. It would be another year before I saw my father again, an unimaginable unit of time in the life of a child. She worked for Tom Hanks. Why shouldnt I read one? He was watching the weather. He walked me through the publishing process: being thrilled by acceptance, ignoring reviews and then having the dream of bestsellerdom dashed What mattered was that you knew how to love the job.. We had just passed Stuyvesant Park when the first tower fell. We will never know all the things other people worry about. Come on, Sooki, he said, his voice gone grand. . How could I not have known? On the Trail of a Mountain Lion The footprint was in the middle of the trail. Wed stood together in the dark of a Washington theater for a matter of minutes a year and a half earlier. How other people live is pretty much all I think about, she says. One thing led to another chief among them, finding out about Raphaels illness and soon, the movie stars longtime assistant had moved into her house. He told me he was going to take his grandsons to the river to go boating. I cleaned out the freezer and the refrigerator and at every moment thought, We are so lucky. For a while she filled in for a friend and was the assistant to a film director, and then another friend introduced her to Tom, who was looking for someone. https://thespectator.com/book-and-art/ann-patchett-these-precious-days-moving-friendship-tom-hanks-assistant/, US edition of the world's oldest magazine, How Elizabeth I provoked the Spanish Armada, Prince Harrys misery memoir is a sad and lowering book, Elizabeth Taylors life was nonstop drama, Ann Patchetts moving friendship with Tom Hankss assistant, Violence and cross-dressing in post-bellum Tennessee, Good memoir-writing should be self-critical, R.B. She wrote home with vivid tales and photographs that demonstrated the color and beauty of her travels in the most unique ways. I didnt say, Your death. Sooki Raphael 12 Titles Is this you? I was struck by an overwhelming sense of wanting to know her, of not wanting to miss Sooki while she was here. We talked about what we were going to make for dinner. My doctor paired up some words I never thought I would hear together: pancreatic cancer and youre in remission! It seems like an early declaration, but Ill take it! One of them was shirtless and had a colorful parrot on his shoulder. More breath. Karl came home and we sat on the couch and watched a storm tearing up the backyard. Small, flat islands of boiled wool were resolutely attached to her scalp by the 2percent of hair that had not fallen out. In the case of The Dutch House, Id started to think about a poor woman who suddenly became rich, and because she was unable to deal with the change in circumstances, she left her family and went to India to follow a guru. My breath was roaring now, in and out, my lungs enormous bellows that would not tolerate my death. Lets go back to the hotel. It has to do with fearing death. I was convinced it wouldnt show up and embarked on a full-scale exploratory mission into holistic healing, prayer, juicing, yoga, meditation, sound waves, and magnetic magic (this last one, highly recommended by a friend, but in a clinic run by a reality-tv star). Sparky had crawled onto my chest and gone to sleep. When she gave us the painting she had done of Sparky on the back of the couch, I felt as if Matisse had painted our dog.. How had she known something was wrong? Karl looked up the name for it on his phone. We were loaded with plans in those days. Going forward, the lights may as well be off. I wanted to call and tell her how it had all turned out. There was no reason for her to tell me this. Backstage, she met his beguiling assistant. No doubt if Tom Hanks and Ann Patchett believe their friend to possess such wonderful qualities, she probably is a saint. No, not Chekhov or Dickens or her one-time hero, Updike. So there she was, stuck with us. Whenever I came to an intersection I would look to the right, the left, then up and down.. She apologized for her late response, saying that shed had a medical procedure and hadnt been in the office. No events scheduled for January 16, 2023. She loved her family and was devoted to her grandchildren. KELLY: Well, it's really, really true, so it was a pleasure to get to say it to you instead of just pining to my book club about how I wish you had another book coming out. Would you just paint us a picture of her? Are you sick?. They arrive daily in padded mailersnovels, memoirs, essays, historiesthings I never requested and in most cases will never get to. assistant Sooki Raphael. I saw Tom and Rita in Nashville two more times. New This Week; Available Now; Plant Types Who is she? Yeah. But now she's memorialized in author Ann Patchett's latest book, These Precious Days: Essays, which will be released Nov. 23. I was an introvert again. The very fact of her existence in our house kept me on track. You will not be called upon to be a good guest. When does the story start and when does it end? Farleys mother fought two battles with cancer. I did a Pilates DVD we never got around to. She walked to the hospital for chemo and then walked home. But I didnt forget. The actor who starred in the romantic movie You've Got Mail sat down and wrote me a letter in his California office in Santa Monica. I have to feel like Im contributing. Of course I want to go. As soon as the roaring thunder of approval eased, he pointed at me and said, She doesnt have any questions.. Westchester was still a pandemic hot spot and there could be no congregating, even outside. You can just concentrate on yourself., She shook her head. In Patchett's wildest dreams, she likely never saw a friendship blossoming later in life that would lead her to become a safe haven for a woman fighting against cancer. 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